Oregon and SW Washington Chapter
With the generosity and support of the Ice Bucket Challenge, The ALS Association Oregon and Southwest Washington Chapter has invested in services to help families living with ALS while committing substantial chapter funds to research.
Added needed stock to our Medical Equipment Loan Program of manual wheelchairs, bathroom equipment, transfer lifts and more to help people with ALS and their caregivers maintain independence.
Added staffing to support access to Alternative and Augmentative Communication services so that people with ALS can communicate if the disease steals their ability to speak. Included in this effort is a unique partnership with the University of Oregon Speech and Communications Disorders program to outreach to people living with ALS in rural communities.
Created “Family Day” education events across the Chapter where the children and grandchildren of people living with ALS can come together to learn about the disease and meet other kids and youth living with a loved one with ALS for support and understanding.
Increased respite and in-home care assistance programs by 30 percent, adding over 5000 hours of professional caregiving hours for ALS families over several years.
Piloted and added a new Chapter Grant Program to assist families living with ALS with $500 grants every six months to help offset the expensive life and healthcare costs of living with ALS.
Since 2014, with growth fueled by the ALS Ice Bucket Challenge the Oregon and SW Washington Chapter has funded an additional $850,000 above our regular contributions in support of the National ALS Association TREAT ALS Research Program. This support included full funding of a $300,000 research grant for Joe Beckman Ph.D. at the Linus Pauling Institute at Oregon State University for his development of Copper ATSM as a potential treatment for ALS.
Many thanks to everyone who donated to the Ice Bucket Challenge, and who continue to support our mission. We could not do this without you!